At the age of five Jessica Fein’s daughter Dalia was diagnosed with a rare degenerative disease that would claim her life at 17. Before that moment came, and inspired by Dalia’s own irrepressible spirit, Fein and her family would discover how to live in the present when the future can’t be fixed. In this heartfelt yet clear-eyed memoir, Fein maps both her journey to becoming an adoptive mom and the roller coaster ride of loving and caring for a terminally ill child, persevering when the simple act of taking a breath can become an act of courage. Through it all, she discovers the need to be both relentless advocate and calm presence, to show vulnerability as well as strength, and to allow joy to be louder than sorrow.
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Event Schedule
PRE-LAUNCH BOOK SIGNING
Derby Day Mitoaction Fundraiser
Mark your calendars and plan to join MitoAction for the hottest Derby Day event in Boston!
Big hats, bow ties, incredible silent and live auction items, signature mint juleps – we’ll have it all!
Mémoire – Encore Boston Harbor
Saturday, May 4 | 5:00 pm – 9:00 pm EST
VIRTUAL
Courageous Parents Network Book Talk
Join us for a thought-provoking discussion of complex parenting, exploring themes of love, resilience, and the profound impact of a rare degenerative disease on one family’s existence.
Virtual on Zoom
Tuesday, May 14 | 8:00 pm ET (7:00 pm CT, 6:00 pm MT, 5:00 pm PT)